Justin Orndorff
Blog # 4 an illness “Crohn’s disease”
Before
I dive into the details of Crohn’s disease ill let you know how it affected me
as a child growing up. My father suffers
from Crohn’s disease which entails having a colostomy
bag which I’ll briefly describe. A proctocolectomy is a procedure
that involves the removal of the colon and rectum resulting in the patient
having to use a colostomy bag to collect their waste. My father’s colostomy bag would fill up with
human waste and you could physically see his clothes rise and hear strange
sounds. My friends would ask questions
and when they found out what was going on with my dad they would tease me and
so on. But the worst part about it
wasn’t the teasing it was that everyone knew me as the kid whose dad had the
colostomy bag. That’s not only how my
dad was labeled by his illness but it was how I was labeled by his illness.
Crohn’s disease is
an illness that produces inflammation in the digestive or gastrointestinal
tract. Crohn’s disease can occupy any area of the gastrointestinal tract, first,
from the mouth all the way to the anus, but it most often it includes the lower
portion of the small intestine, called the ileum. The inflammation attacks the
lining of the ileum or affected organ. Crohn’s
disease affects men and women and seems to be congenital in a number of
families. 20 percent of people with Crohn’s disease have a family member with
an inflammatory bowel disease, usually a brother or sister and occasionally a
parent or child. Crohn’s disease can occur in people of all ages, but it is frequently
diagnosed in people between the ages of 20 and 30.
The etiology of
Crohn's disease is unknown. Crohn’s
disease is an idiopathic disease. There a several theories about what causes
Crohn’s disease. Some researchers believe
that it may be triggered by a bacterium or virus. There is some data that suggests that the
disease could be an autoimmune disorder. An autoimmune disorder is a condition
in which the body's immune system attacks itself. It starts to attack the body’s tissue as if
it were attacking an invading bacteria or viruses. One theory is that the
body’s immune system responds abnormally in patients with Crohn’s disease, confusing
bacteria, foods, and other material as being foreign. The immune response
attacks the foreign invaders. During this process, the white blood cells
accumulate in the lining of the intestines, generating inflammation, which
leads to ulcerations, fistulas, and bowel injury.
Crohn's disease starts
as small, scattered inflamed sores on the surface of the intestine. These inflamed sores then become large ulcers
that penetrate deep into and occasionally through the intestinal walls. Patients can often have ulcers in their mouth
similar to canker sores. Abdominal distress,
cramping and the inflammatory effect in the wall of your bowel can influence
your appetite, your ability to digest food, and the ability of your small
intestines to absorb food properly. Inflammation
from Crohn's disease may burrow through the wall of the bowel into adjacent
organs, such as the bladder or vagina, creating an abnormal connection called a
fistula. Fistulas can lead to an abscess
or pus-filled sores. The fistulas can
also tunnel out through your skin; a general surface for this type of fistula
to form is around the anus. When this type of fistula develops, it's called
perianal fistula.
My father suffered
from severe Crohn's disease where experienced fever, fatigue as well as
problems that occur outside the digestive tract, that include; arthritis, eye
inflammation, skin disorders, and inflammation of the liver or bile ducts. The
course of Crohn's disease differs significantly. Crohn’s disease patients may
experience long periods without symptoms, or experience frequent episodes of
symptoms including abdominal pain, diarrhea, fever, and bleeding as my father
did.
Some patients with Crohn’s disease may need a proctocolectomy, which is
a procedure that involves the removal of the colon and rectum that is
performed along with an ileostomy. An ileostomy is performed after the
proctocolectomy and entails bringing the end of the small intestine, the ileum,
through the stoma, in the abdominal wall, which allows drainage of intestinal
waste out of the body through the colostomy bag. The stoma is usually created
in the right lower abdomen near the belt line.
A colostomy bag must be worn over the opening to collect the waste, and
it must be emptied daily.
The unpredictable
nature of Crohn’s disease and its symptoms, such as diarrhea, gas and abdominal
pain may depress and discourage some patients living with Crohn's disease from
leading healthy, active normal lives. I
remember being known as the kid whose dad had a “shit bag” at school and how
embarrassing it was. My dad’s master
status was his Crohn’s disease and his colostomy bag that he had. Now that im an adult it doesn’t bother me at
all, but as a child it was very embarrassing and I hated being known as the kid
with the dad with the “shit bag.” It
just shows how powerful being labeled can be.
I was labeled through my fathers illness as a child.
Reference:
1.
<digestive.niddk.nih.gov/ddiseases/pubs/crohns>.
2.
<
emedicine.medscape.com/article/172940-overview>.
3.
<
www.CrohnsOnline.com>.